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Subject: RE: [ihc] RE: "state of the art" in medical records sharing


Dear Colleagues,

I am passing this along separately to the NCOR Committee on Ontology 
for Health Informatics as another point of discussion for our next 
meeting. in addition to the most recent addition:
IHE Patient Care Coordination Technical Framework 
http://www.ihe.net/Technical_Framework/index.cfm#pcc

Since our charter is to consider recommendations or guidance on some 
of these issues, it is good to have a wider range of thought such as 
this thread provides.

Thanks,
Rex



At 12:59 PM -0500 9/6/06, Elkin, Peter L.   M.D. wrote:
>David,
>
>My summation of your comments is:  It is one thing to walk a 
>mountain, it is another entirely to conquer the same mountain.
>
>I agree and believe that a more formal method for knowledge 
>representation and a set of standards built on a common data 
>infrastructure to address organizational and workflow issues is 
>where we need to head.  These have more to do with the success of an 
>implementation than the technical details of the systems design.
>
>I have a meeting Friday with Brett and John and I hope that the 
>output of that discussion points a direction toward these goals.
>
>It is great to have your expertise included in the thinking which 
>drives this work.
>
>With warm regards,
>
>Peter
>
>
>Peter L. Elkin, MD
>Professor of Medicine 
>Mayo Clinic College of Medicine
>(507) 284-1551
>Fax: (507) 284-5370
>
>
>
>From: David RR Webber (XML) [mailto:david@drrw.info]
>Sent: Wednesday, September 06, 2006 12:13 PM
>To: Elkin,Peter L. M.D.
>Cc: 'Patrick Gannon'; ddavis@himss.org; 
>'fulton.wilcox@coltsnecksolutions.com'; 'Rex Brooks'; 'Brett 
>Trusko'; ihc@lists.oasis-open.org; 'John Madden'
>Subject: RE: [ihc] RE: "state of the art" in medical records sharing
>
>Peter,
>
>
>Having worked long on HL7 in the past - I can understand how 
>stakeholders cling to their existing systems, hewn from solid rock 
>with bare hands and a chisel as they are.
>
>It is also very intimidating to perview that mountain in itself.
>
>And then there is the caBIG initiative which is throwing yet more 
>high tech at the problem space.
>
>What I see at this point in the game is that IT is not the answer 
>nor Holy Grail that will make all the issues in healthcare go away.
>
>I'm glad you mentioned results orientated accounting too.  I see 
>nurses paid by the hour resulting in fragmented patient care - where 
>one nurse handles 8 cases per shift and another only 1, barely.  And 
>management is powerless to redress these inequities in the current 
>environment - or deliberate exploiting of systems that do not reward 
>good quality work as they should.
>
>IMHO - if IHC is to have some measure of impact here - then we need 
>to first decide exactly what solution set we are going to able - and 
>the problem space it is designed to solve.  I see the great work 
>that IHE/XDS is doing by focusing on one area and attainable goals.
>
>Of information interoperability is a speciality area for me - and 
>the OASIS CAM work in a point in case.  However - medical 
>information - with mixed content and media - XML, handwritten notes, 
>X-Rays and imaging - is something that resists traditional IT fixed 
>bounded processing - as you so well described.
>
>Perhaps - just defining those aspects that will be agreed to and 
>bound - and those that will not - and the mechanisms to manage and 
>exchange the "not" parts - is one possible integration path?
>
>Although again - this is all so familiar terroritory - traversed by 
>DICOM and more - before us.
>
>???
>
>DW
>
>
>-------- Original Message --------
>Subject: [ihc] RE: "state of the art" in medical records sharing
>From: "Elkin, Peter L.   M.D." <Elkin.Peter@mayo.edu>
>Date: Wed, September 06, 2006 11:56 am
>To: "'fulton.wilcox@coltsnecksolutions.com'"
><fulton.wilcox@coltsnecksolutions.com>, 'Rex Brooks'
><rexb@starbourne.com>, 'Brett Trusko' <brett.trusko@oasis-open.org>,
>"'David RR Webber (XML)'" <david@drrw.info>, ihc@lists.oasis-open.org,
>'John Madden' <john.madden@duke.edu>
>Cc: 'Patrick Gannon' <patrick.gannon@oasis-open.org>, ddavis@himss.org
>
>Dear Fulton,
>
>I am intimately familiar with the debate.  For me the issue rests 
>with the ideas of coverage and meaning.  From an Ontological 
>perspective neither organization has an adequate set of upper level 
>Ontologies.  Level one Ontologies being things that are true about 
>the whole world (domain independent) or Level two Ontologies which 
>are the high level constructs / models in the domain of interest. 
> In both cases a consistent set of domain models has been 
>substituted for common messaging (although the VHA proposes to 
>remedy this under the new redo of Vista).  
>
>Instead both organizations work on Interoperability using a 
>combination of messaging and the use of controlled terminologies. 
> Here is where the differences become more apparent.  In the DOD 
>systems they use Medcin which is a precoordinated terminology.  In a 
>recent study published in the Mayo Clinic Proceedings, we showed 
>that only 51.4% of the problems commonly seen at Mayo could be 
>covered by a pre-coordinated terminology.  This is similar to the 
>58% coverage identified in the LSVT trial.  However post-coordinated 
>terminologies could cover 92.3% of the same problem list (p<0.001). 
> The VHA understands the need for understanding not just what few 
>options you give a clinician to pick from (e.g. on a drop down 
>codified pick list), but also in the rich narrative associated with 
>the descriptions of the patients' conditions.  This will provide us 
>with  the opportunity to perform quality management, pay for 
>performance, and will allow us to learn from our practices.
>
>Both organizations have contributed greatly to health IT, and I 
>believe that a truly interoperable specification for recording and 
>transmitting clinical data will be of great benefit to patients. 
> The OASIS IHC being unencumbered by legacy designs stands in a 
>perfect position to deliver this result.
>
>With warm regards,
>
>Peter
>
>Peter L. Elkin, MD
>Professor of Medicine
>Mayo Clinic College of Medicine
>(507) 284-1551
>Fax: (507) 284-5370
>
>
>
>-----Original Message-----
>From: Fulton Wilcox [mailto:fulton.wilcox@coltsnecksolutions.com]
>Sent: Wednesday, September 06, 2006 9:40 AM
>To: 'Rex Brooks'; 'Elkin, Peter L. M.D.'; 'Brett Trusko'; 'David RR 
>Webber (XML)'; ihc@lists.oasis-open.org
>Cc: 'Patrick Gannon'; ddavis@himss.org
>Subject: "state of the art" in medical records sharing
>
>
>As a publicly accessible benchmark, the differences of opinion between the
>U.S. Veterans Affairs medical records proponents and the Department of
>Defense's vigorous defense of its AHLTA system are probably indicative of
>things to come as more large healthcare systems get "mated" for information
>exchange. Presumably this relationship will get sorted out, but it is
>interesting to contemplate the n-way debates that are likely to occur as
>many major and minor healthcare data originators and consumers start to
>integrate.
>
>The VA side (and the VA has been riding has some public "halo effect")
>doesn't like AHLTA's architecture and skimpy coverage (mostly outpatient
>data, not inpatient), and the AHLTA proponents don't like the VA's less than
>standardized vocabularies and supposedly less than adaptable (to DOD's
>needs) architecture. The GAO seems to be mostly on the VA's side. See
>http://www.gao.gov/htext/d06794r.html .
>
>See http://www.military.com/features/0,15240,111127,00.html for the full
>text and related discussion of the report - "Health Data Bottleneck
>Tom Philpott | August 25, 2006, DoD Medical Records Seen as Hurdle for VA
>Health Care (a portion shown below).
>
>The barriers to attaining "seamless" health data exchanges still look pretty
>high.
>
>Fulton Wilcox
>Colts Neck Solutions LLC
>
>"William Winkenwerder Jr., assistant secretary of defense for health
>affairs, took time during an Aug. 23 teleconference with journalists to tout
>his department's ability to transfer electronically the medical records of
>separating service members to the Department of Veterans Affairs.
>
>In doing so, Winkenwerder ignored a rising chorus of critics who say AHLTA,
>the Department of Defense's digitalized medical record system, is a problem
>for the VA and for veterans because, in fact, it doesn't allow electronic
>record transfers outside the military network.
>
>The critics include the Government Accountability Office, senior VA
>officials and, most recently, the chairmen of the both the House and Senate
>veterans' affairs committees.
>
>GAO reported last month that the biggest obstacle remaining for severely
>wounded troops to experience "seamless transition" from military care to VA
>trauma centers is the inability to transfer AHLTA records."
>
>
>-----Original Message-----
>From: Rex Brooks [mailto:rexb@starbourne.com]
>Sent: Friday, August 11, 2006 8:28 PM
>To: Elkin, Peter L. M.D.; 'Brett Trusko'; 'David RR Webber (XML)';
>ihc@lists.oasis-open.org
>Cc: 'Patrick Gannon'; ddavis@himss.org
>Subject: RE: [ihc] RE: HIMSS / internet2 and OASIS IHC?
>
>Hi Peter, David, et al,
>
>This also sounds good to me, too.
>
>Regards,
>Rex
>
>At 5:21 PM -0500 8/11/06, Elkin, Peter L.   M.D. wrote:
>>David,
>>
>>It makes sense to me.  I think we need to pull together a face to
>>face meeting to broach these issues in a serious way.  We might
>>start with the HITSP use cases and see where we feel OASIS does a
>>better job than other available standards, or where there is a
>>crying need for new standards development.
>>
>>Warm regards,
>>
>>Peter
>>
>>Peter L. Elkin, MD
>>Professor of Medicine
>>Mayo Clinic College of Medicine
>>(507) 284-1551
>>Fax: (507) 284-5370
>>
>>
>>From: ihc-return-3-elkin.peter=mayo.edu@lists.oasis-open.org
>>[mailto:ihc-return-3-elkin.peter=mayo.edu@lists.oasis-open.org] On
>>Behalf Of Brett Trusko
>>Sent: Friday, August 11, 2006 4:52 PM
>>To: 'David RR Webber (XML)'; ihc@lists.oasis-open.org
>>Cc: 'Patrick Gannon'; ddavis@himss.org
>>Subject: [ihc] RE: HIMSS / internet2 and OASIS IHC?
>>
>>Hi David,
>>
>>I will be chatting with everyone next week. I am on the road this
>>week but should be able to coordinate something starting next Wed.
>>
>>Best,
>>
>>Brett
>>
>>
>>From: David RR Webber (XML) [mailto:david@drrw.info]
>>Sent: Tuesday, August 08, 2006 2:28 PM
>>To: ihc@lists.oasis-open.org
>>Cc: Patrick Gannon; Brett Trusko; ddavis@himss.org
>>Subject: HIMSS / internet2 and OASIS IHC?
>>
>>Folks,
>>
>>I circulated the announcement below this week and asked the question
>>- where does OASIS fit in the puzzle here?
>>
>>At first brush - the notion is that HIMSS is the owner of the
>>business domain needs, I2 folks understand the network and bit and
>>byte layer, while OASIS sits in between providing the facilitation
>>mechanisms that reach up to the business users ultimately.
>>
>>Well in talking with Didi (Blanca) Davis today who is Director,
>>Integrating the Healthcare Enterprise at HIMSS seems like this could
>>be fitting together quiet nicely.
>>
>>HIMSS next steps is to form working groups with I2 folks to start
>>defining the USE CASES.
>>
>>At that point they will then solicit input and feedback and we can
>>start figuring out how our OASIS works fits into the equation - and
>>what we can do today and what new enhancements we need to
>>accommodate HIMSS / I2<http://era.nih.gov/> next generation
>>capabilities?
>>
>>My suggest is that IHC is the ready-made TC on the OASIS side that
>>can take ownership of that process and be the conduit between the
>>other OASIS TCs and HIMSS / I2.
>>
>>Does everyone concur?
>>
>>If so - then of course - those interested can involve themselves
>>more deeply in the HIMSS / I2 use case development - but otherwise I
>>think this is a good plan for now.
>>
>>I've CC:d Didi here so she has our PoC information.
>>
>>Thanks, DW
>>
>>
>>FYI
>>
>>Focused on Creating an Advanced and Interoperable Medical Network,
>>HIMSS and Internet2 Announce Collaboration
>>
>>The two organizations will leverage each other's expertise to
>>explore the viability of an independent and logically interconnected
>>medical network in the United States
>>
>>
>>
>>CHICAGO, Ill. and ANN ARBOR, Mich. - August 1, 2006 - The
>  ><http://www.himss.org/>Healthcare Information and Management Systems
>>Society (HIMSS) and <http://www.internet2.edu/>Internet2 announced
>>today that the two organizations have created a partnership to
>>explore the development of a secure, reliable and advanced
>>networking solution for the transmission of medical information,
>>messages and images throughout the broad healthcare industry.
>>
>>
>>
>>The two organizations are exploring a new network designed to offer
>>the health sciences and healthcare sectors a private and secure
>>medium for exchanging health information. A next-generation
>>architecture built to meet federal regulatory requirements, this new
>>network may also have value to offer in the work of the Nationwide
>>Health Information Network (NHIN).
>>
>>
>>
>>This ground-breaking collaboration is a natural extension for both
>>not-for-profit organizations. Through a membership of 20,000
>>individuals, 45 chapters, and more than 300 corporations
>>representing millions of employees, the HIMSS mission focuses on the
>>betterment of healthcare through the most effective use of
>>information technology and management systems. Internet2, the U.S.'s
>>advanced networking consortium led by 208 U.S. university members in
>>partnership with over 100 industry and government members, works to
>>develop and deploy advanced networks, applications and resources.
>>
>>
>>
>>"HIMSS and our members look forward to this collaboration with
>>Internet2," said H. Stephen Lieber, HIMSS president/CEO. "The
>>synergies between HIMSS and Internet2 brought our organizations
>>together to consider and evaluate the feasibility of establishing a
>>network that would meet the evolving needs of the biomedical and
>>healthcare delivery community."
>>
>>
>>
>>Since 1999, Internet2 has operated an advanced nationwide network
>>that supports leading-edge Internet technology development for the
>>research and academic community. Internet2 recently announced a
>>major upgrade to this network to provide members 10 times the
>>capacity and speed of its current infrastructure. In addition, the
>>Internet2 community has successfully developed important middleware
>>technologies to address critical issues in authentication and
>>authorization in order to enable active privacy management. Through
>>this partnership, HIMSS and the Internet2 community will work
>>closely together to leverage these leading-edge technologies to
>>explore development of brand new capabilities that meet the specific
>>security and privacy needs of the healthcare industry.
>>
>>
>>
>>"The research and education community has long understood the
>>potential for leveraging advanced Internet technology to enhance the
>>healthcare industry's ability to serve the public's needs, to
>>improve the flow of information for research, to streamline care
>>processes and to enable cost savings," said Douglas Van Houweling,
>>Internet2 president and CEO. "Our partnership with the HIMSS
>>community is a major step forward in realizing this vision. Together
>>we will work to create a new state-of-the-art platform for
>>biomedical research, education and clinical practice on a national
>>scale."
>>
>>
>>
>>Through the partnership, four working groups have been established
>>to explore the requirements and capabilities needed to create an
>>advanced medical network during the next year. HIMSS and Internet2
>>will join each other's organizations. Members of both organizations
>>will also join each of the four working groups, which include:
>>
>>o        Identity Management that will allow the identification and
>>authentication of individuals regardless of their physical location.
>>
>>o        Privacy & Security that will focus on the tools and
>>techniques that will assure the privacy and security of the
>>information that travels on the network.
>>
>>o        Biomedical (Health Sciences and Healthcare) Education that
>>will focus on meeting the unique needs and accessing the resources
>>required for biomedical education.
>>
>>o        Telehealth that will focus on the implications for clinical
>>practice when a reliable advanced network is available.
>>
>>
>>
>>In addition, members of both organizations will work for the
>  >development and implementation of the network with other
>>partnerships and collaborations, including Integrating the
>>Healthcare Enterprise (IHE).
>>
>>
>>
>>About HIMSS
>>The Healthcare Information and Management Systems Society (HIMSS) is
>>the healthcare industry's membership organization exclusively
>>focused on providing leadership for the optimal use of healthcare
>>information technology (IT) and management systems for the
>>betterment of healthcare.
>>
>>
>>
>>Founded in 1961 with offices in Chicago, Washington D.C., and other
>>locations across the country, HIMSS represents more than 20,000
>>individual members and over 300 corporate members that collectively
>>represent organizations employing millions of people. HIMSS frames
>>and leads healthcare public policy and industry practices through
>>its advocacy, educational and professional development initiatives
>>designed to promote information and management systems'
>>contributions to ensuring quality patient care.
>>
>>
>>
>>About Internet2
>>Led by more than 200 U.S. universities, working with industry and
>>government, Internet2 develops and deploys advanced network
>>applications and technologies for research and higher education,
>>accelerating the creation of tomorrow's Internet. Internet2
>>facilitates the kinds of dynamic partnerships among academia,
>>industry, and government that helped foster today's Internet in its
>>infancy. For more information about Internet2 network capabilities,
>>visit <http://networks.internet2.edu/>http://networks.internet2.edu.
>>
>>
>>
>>For more information, contact:
>>HIMSS
>>Joyce Lofstrom, MS, APR
>>Manager, Corporate Communications
>>312-915-9237 - <mailto:jlofstrom@himss.org>jlofstrom@himss.org
>>
>>
>>
>>Internet2
>>Lauren Rotman
>>Manager, Public Relations
>>202-331-5345 - <mailto:lauren@internet2.edu>lauren@internet2.edu
>>
>>
>>
>>
>>---------------------------------------------------------------------------
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>>
>>Thank you
>>
>
>
>--
>Rex Brooks
>President, CEO
>Starbourne Communications Design
>GeoAddress: 1361-A Addison
>Berkeley, CA 94702
>Tel: 510-849-2309


-- 
Rex Brooks
President, CEO
Starbourne Communications Design
GeoAddress: 1361-A Addison
Berkeley, CA 94702
Tel: 510-849-2309


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