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Subject: RE: [regrep] RE: DNS like distributed search for RegistryObjects


Matt,
 
Quite!   The deltas between the DNS and the EHR world are instructive.
 
1) Everyone is deliberately blocking on developing an open EHR API -
betting their own stuff will win by market inertia first.
 
2) Ditto allocation of funding towards this - HHS is trying - but the
small business award from their recent RFP was removed - and assigned
to IBM and CSC instead...!
 
3) You cannot go to jail for accessing someones DNS records.
 
4) Policy models: the information is the DNS is deliberately intended to
be open public - not closed private.
 
5) The federation model and trust models are paradoxically similar -
therefore re-use of underlying technology layers = feasible - given
resolution of the policy model. 

DW
 
 -------- Original Message --------
Subject: RE: [regrep] RE: DNS like distributed search for
RegistryObjects
From: "Matt MacKenzie" <mattm@adobe.com>
Date: Thu, April 13, 2006 9:36 am
To: "David RR Webber (XML)" <david@drrw.info>
Cc: <john@maphin.net>, "Farrukh Najmi" <Farrukh.Najmi@Sun.COM>,
<regrep@lists.oasis-open.org>

 
 Im not particularly interested in diving into the use case unless Im
getting paid to do so J, but I will say this:   DNS is the most
successful federated registry system ever devised.  Learn something
from it.  J   -matt 
 
   From: David RR Webber (XML) [mailto:david@drrw.info] 
Sent: Thursday, April 13, 2006 9:32 AM
To: Matt MacKenzie
Cc: john@maphin.net; Farrukh Najmi; regrep@lists.oasis-open.org
Subject: RE: [regrep] RE: DNS like distributed search for
RegistryObjects   Farrukh,
 
I'm concerned here as part of what John is asking for is NOT a
technology solution.
 
Fire, Aim, Point - I suspect we need a little more Point, Aim, Fire -
and BCM directed analysis first... as to the business needs and actual
service models.
 
The models John is indirectly referencing are basically competing
proprietary approaches to this from service providers - there are
literally dozens of these competing for market share.
http://www.ehto.org/ehto/ehealthrecord.html
 
Paradoxically none of them seem to have the slightest idea (the ones of
asked!) about the notion of shared registry services - basically they
are "eyes down" - their answer is "Yes - we can do that - just buy our
service / install our software".  The notion of supporting an open
public API specification is something they do not have time to waste
chasing...because their system has all the information you ever need.
 
Now - there is however the IHE/XDS work.  For me this has always been
the mostly likely candidate - because the biggest issue here is NOT
technology - its policy and security and access models.
 
Who is allowed to see what?  How do you credential the search query? 
You certainly cannot just hand out patient information willy-nilly. 
The best I think you can hope for is to ascertain that a registry MAY
have information that relates to a patient.  Notice - data entry
screw-ups happen frequently in busy hospital and care center
environments - so matching on Patient Name, Telephone #, Age, Address,
SSN with some weighting algorithm may be needed ( I wrote one of these
for 3M Healthcare some 10 years ago now to reconcile patient records
across city care providers - such as Cincinnatti, Baltimore, Pittsburg
and so on where you have same patient going to one or more providers in
the same city care group).  Notice even the SAME hospital may have
duplicate records for the one patient!
 
Given all these caveats - here's a short list of business factors:
 
1) Security model is essential - who is making query, what information
is to be matched, what can be returned?
 
2) Audit trail is essential - who accessed the information and when?
 
3) What certificates and authentication can be applied?  To the patient
themselves, and to the requester?
 
4) Who owns the information?  The patient or the care provider?
 
5) What API needs to be defined to support the business requirements?
 
6) How do care providers begin to participate in this?
 
I suspect the answers to much of this lay in a joint collaboration with
IHE/XDS, NIST, OHC Project and this TC - to hammer out extensions to
the existing IHE/XDS secure server - because that way - whatever is
built then becomes immediately accessible to all those currently
implementing those servers...
 
See:
http://ebxmlforum.blogspot.com/2006/04/open-healthcare-framework-ohf-project.html
 
Thanks, DW 
    -------- Original Message --------
Subject: [regrep] RE: DNS like distributed search for RegistryObjects
From: "Matt MacKenzie" <mattm@adobe.com>
Date: Thu, April 13, 2006 8:45 am
To: "Farrukh Najmi" <Farrukh.Najmi@Sun.COM>,
<regrep@lists.oasis-open.org>
Cc: <john@maphin.net>

It is possible to represent a classification scheme using DNS-SD...which
I
think is a great idea as it would allow for very fine grained
partitioning.
Please let me know how I can help, I'll try my best to find some time.
-matt

-----Original Message-----
From: Farrukh Najmi [mailto:Farrukh.Najmi@Sun.COM] 
Sent: Thursday, April 13, 2006 8:14 AM
To: regrep@lists.oasis-open.org
Cc: john@maphin.net; Matt MacKenzie
Subject: DNS like distributed search for RegistryObjects


Dear Colleagues,

Attached is an email from John Hardin whom many of you may know already.

John's email has reminded me of the the need for the TC to define a DNS 
like distributed search for RegistryObjects.
He shares a very real use case from Electronic Patient Records world on 
how important this functionality is.

I share this sense of importance and would like to propose that we as a 
TC consider starting a work item focused on
defining a normative spec addressing this requirement. As a starring 
point we could study past work by Matt MacKenzie on the subject:

http://www.oasis-open.org/committees/download.php/6852/tn-ebreg-dnssd-02.htm
l 


What do Matt and TC colleagues think?

-- 
Regards,
Farrukh 
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